The North Carolina Council on Developmental Disabilities hosted its first public input session in New Bern Monday to receive community input for its next Five-Year State Plan.
Public input sessions are held across the state to help the council better understand the needs of people with intellectual and developmental disabilities, said Talley Wells, executive director of the North Carolina Council on Developmental Disabilities.
Wells explained that the Five-Year State Plan maps out the current priorities for people with intellectual and developmental disabilities and includes initiatives to address those priorities.
The council uses input from the public input session to identify clear goals, steps to reach those goals and actions to create systems change.
The council’s next Five-Year State Plan will be in effect from 2027 to 2031.
The current five-year plan includes initiatives that help give law enforcement the best tools to interact with people with intellectual or developmental disabilities and improvements for workforce development.
“Public input sessions are essential because this is where people who are living day to day, as a person with an intellectual disability say, down syndrome or autism, can share with us their priorities,” Wells said.
Family members, friends and caregivers of people with intellectual or developmental disabilities also provide valuable insight at public input sessions.
The council’s New Bern public input session occured Monday at Craven Community College, at 800 College Way. A few attendees traveled from Onslow and Pamlico counties to voice their concerns and struggles as well.
Myron Gavin, N.C. Council on Developmental Disabilities member representing Craven County, is an advocate for people with intellectual and developmental disabilities. She’s been on the council since 2016 to help create and enforce changes that can make communities across the state accessible for everyone.
When she joined the council in 2016, she was the only member from Craven County and one of the few members from eastern North Carolina.
“I’m just so thankful that the council was able to work it out so they could be here,” Gavin said.
“I think it is extremely important that they hear somebody’s voice other than mine echoing what I see as a need or what needs to take place here in Craven County and surrounding areas in order to support the intellectual and developmental disability population.”
Gavin said the public input sessions are also important because it shows the intellectual and developmental disability population, as well as caregivers, that they aren’t alone in their advocacy journey.
Brendon Hildreth is a self-advocate on the council, who led an initiative to switch the traditional handicap icon to a new accessible icon logo across North Carolina.
Brendon Hildreth, who also serves on the council representing Craven County, is the director of the accessible icon project in North Carolina and a peer disability consultant for the North Carolina Division of Employment and Independence for People with Disabilities.
Hildreth said New Bern was the first city to officially adopt the use of the new accessible icon logo. He said Mayor Jeffrey Odham was instrumental in changing the current handicap signs in New Bern to the more current accessible logo.
“(Odham) is an advocate and always supports disability awareness,” Brendon Hildreth said.
“He has continued to show interest in moving forward with disability rights.”
Odham joined the public input session to hear more about the council and some priorities of the intellectual and developmental disability community.
He also mentioned the city’s recent elevator project at city hall, which Brendon’s mother, Darcy Hildreth, was a big proponent of.
“It took a long time to do that and it was a significant investment the city made in that,” Odham said. “But if we would have done it years ago, when it should have been done, it wouldn’t have cost as much as it did.”
Odham said the city hall elevator project and updated accessible icons are a couple of good things the city has done.
“Obviously, we want to do more,” he said.
Brendon Hildreth said people with disabilities want to work, go to school, attend college and contribute to society.
“People with disabilities need to get out in the community, have their needs met and heard and get information,” Brendon Hildreth said. “But people need support.”
Darcy Hildreth said there is a nationwide lack of support for people with intellectual and developmental disabilities.
During the day, Darcy Hildreth is her son’s direct service provider and helps him with personal care and work needs.
“But wouldn’t it be nice, as a 35-year-old man, if you didn’t have to have Darcy during the day and mom at night, if he could be out in the world?” Darcy Hildreth said.
She said a lack of awareness and lack of livable wages for professional direct service providers has led to a gap in support for people with intellectual and developmental disabilities.
Other residents of New Bern and the surrounding area echoed the same sentiments during the public input session.
Area residents in attendance said other needs for the disabled community include specialized intellectual and developmental disability schools, advanced technology, accessibility to resources, more day school and trade school programs and awareness.
In addition to hosting public input sessions across North Carolina, the council also uses an extensive survey to identify the priorities and needs of the intellectual and developmental disability community, Wells said.
The survey is open to people with intellectual and developmental disabilities, caregivers, professionals and other members of the community.
The deadline to submit the survey is Sept. 30.
Information about the survey, upcoming public input sessions and the Council’s Five-Year State Plan is available at https://tinyurl.com/4zs3rnxz.