Charlotte Cohen, 12, will be one of dozens of children, teens and adults featured in a Down syndrome awareness video in Times Square.
BEACHWOOD, NJ — Since she was young, Charlotte Cohen has appeared in ads here and there: a Toys R Us gift guide, and for Legoland for Macy's, among others.
On Saturday, she will appear in the largest ad she's ever been part of, when the 12-year-old Beachwood resident's photo is displayed on a pair of billboards in the heart of Times Square.
The display is part of the annual National Down Syndrome Society Times Square video presentation, which aims to help promote acceptance and inclusion of people with Down syndrome.
The photo of Charlotte — wearing a gold dress and boots with Christmas decorations around her — was chosen from 2,400 photo entries and is among 500 photos that will be shown during the hourlong presentation. The photos include children, teens and adults from all 50 states, the organization said.
"She's excited about it," Charlotte's mother, Jen, said in an interview with Patch. "It just brings awareness to Down syndrome," a genetic condition that occurs when a person has a full or partial extra copy of chromosome 21.
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About 1 in every 772 babies is born with Down syndrome, and about 5,100 babies are born each year with it in the United States, the National Down Syndrome Society says, citing the Centers for Disease Control and Prevention.
Despite being the most common chromosomal condition, many people are still not familiar with it or what the condition means for a person who is born with Down syndrome.
"Before we had Charlotte we didn’t know anyone with Down syndrome," Jen Cohen said. What she and her husband, Jim, have learned is that their daughter has plenty of abilities that allow her to live a happy life.
"She’s got the biggest personality," Jen said.
"She can make anybody smile," Jim said.
Charlotte is the Cohens' third child — they have a son, Jimmy, who's 21, and a daughter, Samantha, who's 18. When Jen was pregnant with Charlotte, prenatal testing revealed the Down syndrome.
The couple said her doctors, especially Dr. Elsa Castro, were positive from the start.
"When we got the diagnosis, she was amazing," Jen said. "She told us 'We’re going to get through this, everything is going to be great.' "
"When you hear your child is going to have a difficulty, it's stressful," Jim said.
People with Down syndrome can have a range of challenges, from intellectual disabilities to physical disabilities. Beyond certain physical characteristics, including a slightly flattened facial profile and smaller stature, how each child is affected varies widely.
For Charlotte, one of the biggest issues was she was born with only two chambers in her heart, Jen said.
"They rebuilt her heart" after Charlotte was born, Jen said. She has had two additional heart surgeries, including one in April.
"We’ve been very fortunate," Jim said. "There are a lot of children who have Down syndrome who have other challenges that come with it. We are very fortunate that she’s as capable as she is."
Charlotte, who started sixth grader at Toms River Intermediate South on Tuesday, attended Pine Beach Elementary School.
"They loved her there," Jen said. "They all looked out for her."
Her favorite subject? "Math," she said via speakerphone.
Charlotte also loves sports, and participates in Special Olympics in gymnastics, soccer and track. She also is part of a cheerleading team for children with special needs, run out of the Southern Rams American Youth Football organization in Manahawkin.
"They have two competitions and they cheer at all the (AYF) games," Jim said.
Most of all, she's "very, very social, very personable," Jen said.
When she was 2 years old and participating in the Young Athletes program through Special Olympics, "she would just wave and blow kisses," Jim said. She did the same at a talent show at school.
That social personality that lights up a room has opened doors, literally, her parents said.
"We went to see the musical Six" in New York, Jen said. Afterward, they asked Charlotte if she wanted to wait outside the stage door to meet the actors.
"All of sudden she starts talking to the security guard and soon he's her best friend," Jen said. The security guard ushered them in and introduced Charlotte to the actors as his friend, giving them a chance to meet the actors.
"We have done so many great things because of her," Jen said.
On Saturday Charlotte, Jen and Jim will be in New York City to see Charlotte's photo on the billboard for the National Down Syndrome Society video presentation, which will be on the two JumboTron screens above Dos Caminos restaurant in Father Duffy Square.
Jen follows the organization on Facebook and submitted the photo, taken by Halpin Studios when she saw the call for entries, then got the pleasant surprise that Charlotte's photo had been chosen.
The presentation, which will be live-streamed on the society's Facebook page beginning at 9:30 a.m., kicks off the organization's annual New York City Buddy Walk, which aims to celebrate and promote awareness and understanding of Down syndrome.
The Buddy Walk has taken place in New York City since 1995 and expanded to a National Buddy Walk Program with events across the country and some internationally.
This is the first time the Cohens have participated in an event with the national organization; they are part of the New Jersey chapter of Network 21, a support group for families that has meet-ups and events, as well as local connections for those needing help finding information or resources to help family members with Down syndrome.
Saturday will be just another adventure for Charlotte, just another opportunity to light up the world with her smile.
"She’s just out there living her life to the best of her ability," Jen said.
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